Warning Since October 2023
As we've mentioned, repeatedly, on the podcast and social media, all must safeguard their DNA data. If you haven't been keeping up with 23andMe. The summary is they announced the filing of Chapter 11 Bankruptcy on 23 Mar 2025. We've been waiting!
What Does This Mean to the Consumer
Your data will most likely be part of sell-off or financial recovery and it can be used for any purpose, not just genetic family DNA connections.
Remember unlike medical, DNA companies' genetic data are not part of HIPAA, the Health Insurance Portability and Accountability Act laws. This suggests that your data is not patient data but consumer data without federal "safeguards." If you did not' know this fact, you probably haven't listened to th Hittin' the Bricks with Kathleen podcast episodes. You will want to subscribe and join the fun, information and research tips!
Below, I have provided further information on how you can safeguard your 23andMe DNA and/or backup any of your DNA results. Once you back up the data you paid for on your personal computer device, you may wish to transfer this data for free to a more solvent DNA testing company/
California Attorney General issued a consumer alert on March 21 advising users to delete their data and destroy any stored genetic samples. “Given 23andMe’s reported financial distress, I remind Californians to consider invoking their rights and directing 23andMe to delete their data,” Bonta said.Before deleting your 23andMe you may wish to keep the data.
To delete your data, log in to your 23andMe account, navigate to “Settings,” click “View” under the “23andMe Data” section, and select “Permanently Delete Data.” Confirm the action via a link sent to your email. Users can also delete stored saliva samples and revoke research consent through their account settings. Source
It's easy.
>Set up a free account on the new site
>Download the DNA Raw Data (DNA Data) from your paid kit to your computer. Don't open it, just download.
Need help finding RawData?ancestryDNA
23andMe
myHeritage
FamilyFinder, of FamilyTreeDNA
Upload your DNA Raw Data (DNA Data) from your paid kit to other sites following one of the instructions below. Why not? It's Easy and free.
Upload to LivingDNA (strong in European connections)
Note: You cannot upload to ancestry.com or 23andme, but you can use the Raw data generated to upload to myHeritage, FamilyTreeDNA, and LivingDNA. without purchasing another DNA test, but still have a connection with DNA cousins.
Cancel 23andMe
Once you have downloaded your DNA Raw Data from 23andMe, don't forget this next step. this is most important if you only wanted your DNA - OTC kit for DNA genealogical research.It can also be used for other purposes, some nefarious.
Therefore, some may wish to completely sever ties with 23andMe and have their sample of your DNA (yes they save them) deleted from their assets. However, you are the consumer here, so you must explicitly request that your account be deleted (do this after downloading raw data to your desktop). Verify that you receive a confirmation email stating that your account has been removed.
Here's an earlier post dated 18 Mar 2024: Spring Cleaning Newsleter: DNA Must Do
As we expected this outcome for 23andMe, a3Genealogy since Oct 2023-early 2024, we have not been recommending that OTC (Over the Counter) DNA testing kit. So if you didn't take precautions then, now is the time to take heed to this recommended action.
Take Action NOW
Kathleen Brandt